littleliam

thanks

2009-06-30T14:35:00.000-07:00

thankyou for all the nice comments we recieved about the documentary.

The guys at channel 5 were so nice and it was good to be on "This Morning" although I have not seen it, friends said it was good and funny how Liam kept running off, I was worried but Philip Scofield learned over and told me it was fine. He was really nice.

Liam is doing really well and loving the weather, he wants to play in the garden with his friends all day. We have to make him come in in the evening (under lots of protest from him).

We will be in Liverpool in August for the "Walking with Giants" convention, it is so good to catch-up with the other families and so great for Liam to see the children like him. The support we give eachother is so important to us.

I recieved a lovely offer for help with clothes for Liam from a lady called Sandy. Sandy, thankyou and could you please contact me again so I can contact you

2009-04-08T06:22:00.000-07:00

i can not believe how long it is since I wrote last! I am having the worst problems with my computer. Am having to do this no someone elses.
anyway we are having Liam's MRI (brain scan) every year now and he has been given the all clear this year so that is great news.

Laim, Alex and Finn have done a documentary for channel 5 extraordinary people called the tinest toddlers it is on 15th April 9pm

Liam is doing really well except fights us all the way when it comes to wearing his glasses, another work in progress.
He has grown a little and is now 76cms and weighs 1 stone 1lb so we have had to go and get him longer trousres but the waist band hangs on him so I need to take them in. Growing up with Blue Peter really pays off!

whats happening

2008-09-17T08:34:00.000-07:00

so sorry to everyone that I am so rubbish with computers and updating this blog. I have had a few friends of Liam telling me off.
Again sorry.

We had such a time in America!
for starters we have never been so tired. It was a really big journey and we had so many meetings to go to, some very hard to deal with. It was very emotional.

We arrived and said to eachother never again! But on the third day we met the potentials foundation which is the charity for primordials and their families in USA. After just a short time we said we would come every year if it were possible.
Straight away Liam clicked with the others, you would never of guessed they did now know eachother. To see the way they played and for us to not be worrying about Liam being knocked over or the children being rough with him, picking him up and patting him on the head, which are things that happen all the time at home and he is satrting to get qutie mad about.
Liam had such a great time and Martin made some good friends. some he has kept in touch with.

For me and Robbie some of it was hard work. One meeting I'm afraid I had to leave for a while as we were being informed about new information about a anurisms and one of the mums spoke about the child she lost, I just brust into tears.
There were experts there that gave us so much infromation and lots of tips to make Liams life alot easier. We learnt so much and not just form the experts, from the parents as well. they were so great, I could talk to them forever. all at the convention were so welcoming and we were shocked to meet so many that had already heard of Liam but to talk with the parents from potentials, it was so lovely and to talk to people that understood what we were saying and had such simular stories makes such a difference. The support was overwhelming. They made us feel like family.
I will try and get some photos of the trip put up.
thankyou again to everyone that has suported us and made our trip possible.

You can see some of our trip on BBC1 Wednesday 24th at 7.30pm on Inside Out. this is only for people in Nottingham but for others you will be able to get it on the net(iplayer)

Also we will be on Victoria Park(oppersite Victoria Leisure Centre) in Sneinton, Nottingham. There will be a fun day there 10am-4pm. It will have stalls, health information and advise, a bouncy castle, facepainting and other childrens activities. The day is to raise funds for the Windmill Pratice childrens room and for Liam.
It would be great to see lots there

not long to go!

2008-06-10T14:12:00.000-07:00

I can not believe we are going to Detoit next week!
i can not believe we are going at all!
thankyou to everyone that has helped us
we are really excited but also have some worries about the journey and some of what we are going to learn
Liam is such a joy and a blessing but he comes with a lot of worries and heartache
Wish us luck!

liam off school again

2008-05-07T03:45:00.000-07:00

yes he is off again!

He has been having a few bad nights again, his sleeping is all over the place and he is so tired in the morning that we had to let him sleep in

he does seem a lot better today so we hope he will go back tomorrow

those that know us know that he has quite a bit of time off but luckerly it is always just the usual little bugs that young ones get although he does get them more often. the school is very understanding

he has his ups and downs

donations

2008-04-21T04:51:00.000-07:00

I have been asked if people can leave donations for Liam to help fund our trip.

If you go to Liam's home page, you can click on donations at the top right of the page.

For those of you that have already donated, thankyou so much

2008-04-19T04:59:00.000-07:00

WOW!
just read the comments I have been sent
it is so nice to recieve them
Hi ya Kim how are you and kids?
To the others thankyou so much for your words, they mean so much.
I feel like Liam has some kind of magic, he always makes people smile and people love him so

what a couple of days!

2008-04-19T03:44:00.000-07:00

well my life has just turned a little serreal. I am sitting on sofas talking to people I normally only see on tele.

thursday afternoon I had a call asking us to go to London to go on breakfast tv so off we went on the train and stayed at a hotel.
6.30 the next day and we were taken to the bbc. We went on tele, were then taken upstairs and went on the radio, were taken back down again to which we went on tele again and then back home on the train.
While waiting for the train I get a call asking us to go on bbc east midlands. Marie has been so lovely I couldn't say no to her so later that day were there sat on a sofa talking to Domanic and Ann. Liam really loved Ann and kept her talking for ages.
The documantary was on tv last night as well

What a couple of days!Liam as our little star!

Thankyou to everyone being so nice to us and thankyou for your help and support

2008-04-15T07:23:00.000-07:00

the documentary I spoke of is this Friday 18th 7.30pm BBC1
Personally I think Liam is gorgous on the tele but then I am bias let me know what you think

A big thankyou at all that have helped and supported us

2008-03-11T11:26:00.000-07:00

To give you some extra news:

We are having a fundraiser for Liam Easter Sunday 23rd. It will be at the Greyfriars, Gordon Road, St Anns, Nottingham.1-6pm
There will be fun for kids and adults and some prizes to be won.
Come and see us and we hope for a good day!

We are also going to be on the tele.
BBC1's Inside Out have been filming a documentary about Liam and it is expected to be shown in April. We will let you know when we have a precise date.
Loads of thanks to Marie and Darren(the camera man), you have both been lovely.

2008-03-11T11:11:00.000-07:00

Saturday we had a great day!

Liam broke a world record. Well, he was one of 1119 people that broke a record. It was for the most Robin Hoods in one place and took place at Nottingham Castle. We had had problems in the morning so were running late but we just made it, they slapped a number on his back rushed us on the green and then they started the countdown. So Liam must have been the 1,119th Robin Hood. He really enjoyed it, especially the Robin Hood Squirrel who took time to say hi to the kids.

apoligies and what has been happening

2007-11-27T04:46:00.000-08:00

Hi I am Joanne, Liam's mum.

Firstly I would like to say sorry for not writting something sooner. To be honest websites, emails and all that are pretty new to me and I had to get the guys from Flexyweb to come and show me how to do this. Thankyou Flexyweb so much for the website and your patience with me.

We have been in Closer magazine a couple of times and are in the process of making a BBC documentary. Liam has been in The Evening Post (our local paper) a couple of times, they wrote a lovely article about him and featured him on the front page. This publicity has made our lives a little easier as people will come up to us and ask, "is that Liam from the paper?" and"how is he doing?" were as before we had a lot of pointing, coments behind our backs and," what is wrong with him?"

Liam has now turned three. We had a lovely party, some of which was in Closer and will be shown in the documentary. We brought him a bike which needs a few alterations but is such a find for his size. He is getting too grown up to be in a buggie but can not walk for very long. One step for us is three or four for him.

He has also started school. (Well nursery, in the afternoons) The school is really supportive, they let him visit a few times so he would know what to expect. They have to get in special chairs and three different types of step and Liam has a worker to help him and make sure he is not knocked over outside. Her name is Jane and Liam loves her.
I have to say though he only started four weeks ago and he is off sick for the second time already. It is frustrating and it is horrible to see him ill put that is how things can be.

Thankyou to all the people that have given us support.