Tuesday, June 30, 2009

thanks

thankyou for all the nice comments we recieved about the documentary.

The guys at channel 5 were so nice and it was good to be on "This Morning" although I have not seen it, friends said it was good and funny how Liam kept running off, I was worried but Philip Scofield learned over and told me it was fine. He was really nice.

Liam is doing really well and loving the weather, he wants to play in the garden with his friends all day. We have to make him come in in the evening (under lots of protest from him).

We will be in Liverpool in August for the "Walking with Giants" convention, it is so good to catch-up with the other families and so great for Liam to see the children like him. The support we give eachother is so important to us.

I recieved a lovely offer for help with clothes for Liam from a lady called Sandy. Sandy, thankyou and could you please contact me again so I can contact you

Wednesday, April 8, 2009

i can not believe how long it is since I wrote last! I am having the worst problems with my computer. Am having to do this no someone elses.
anyway we are having Liam's MRI (brain scan) every year now and he has been given the all clear this year so that is great news.

Laim, Alex and Finn have done a documentary for channel 5 extraordinary people called the tinest toddlers it is on 15th April 9pm

Liam is doing really well except fights us all the way when it comes to wearing his glasses, another work in progress.
He has grown a little and is now 76cms and weighs 1 stone 1lb so we have had to go and get him longer trousres but the waist band hangs on him so I need to take them in. Growing up with Blue Peter really pays off!

Wednesday, September 17, 2008

whats happening

so sorry to everyone that I am so rubbish with computers and updating this blog. I have had a few friends of Liam telling me off.
Again sorry.

We had such a time in America!
for starters we have never been so tired. It was a really big journey and we had so many meetings to go to, some very hard to deal with. It was very emotional.

We arrived and said to eachother never again! But on the third day we met the potentials foundation which is the charity for primordials and their families in USA. After just a short time we said we would come every year if it were possible.
Straight away Liam clicked with the others, you would never of guessed they did now know eachother. To see the way they played and for us to not be worrying about Liam being knocked over or the children being rough with him, picking him up and patting him on the head, which are things that happen all the time at home and he is satrting to get qutie mad about.
Liam had such a great time and Martin made some good friends. some he has kept in touch with.

For me and Robbie some of it was hard work. One meeting I'm afraid I had to leave for a while as we were being informed about new information about a anurisms and one of the mums spoke about the child she lost, I just brust into tears.
There were experts there that gave us so much infromation and lots of tips to make Liams life alot easier. We learnt so much and not just form the experts, from the parents as well. they were so great, I could talk to them forever. all at the convention were so welcoming and we were shocked to meet so many that had already heard of Liam but to talk with the parents from potentials, it was so lovely and to talk to people that understood what we were saying and had such simular stories makes such a difference. The support was overwhelming. They made us feel like family.
I will try and get some photos of the trip put up.
thankyou again to everyone that has suported us and made our trip possible.

You can see some of our trip on BBC1 Wednesday 24th at 7.30pm on Inside Out. this is only for people in Nottingham but for others you will be able to get it on the net(iplayer)


Also we will be on Victoria Park(oppersite Victoria Leisure Centre) in Sneinton, Nottingham. There will be a fun day there 10am-4pm. It will have stalls, health information and advise, a bouncy castle, facepainting and other childrens activities. The day is to raise funds for the Windmill Pratice childrens room and for Liam.
It would be great to see lots there

Tuesday, June 10, 2008

not long to go!

I can not believe we are going to Detoit next week!
i can not believe we are going at all!
thankyou to everyone that has helped us
we are really excited but also have some worries about the journey and some of what we are going to learn
Liam is such a joy and a blessing but he comes with a lot of worries and heartache
Wish us luck!

Wednesday, May 7, 2008

liam off school again

yes he is off again!

He has been having a few bad nights again, his sleeping is all over the place and he is so tired in the morning that we had to let him sleep in

he does seem a lot better today so we hope he will go back tomorrow

those that know us know that he has quite a bit of time off but luckerly it is always just the usual little bugs that young ones get although he does get them more often. the school is very understanding

he has his ups and downs

Monday, April 21, 2008

donations

I have been asked if people can leave donations for Liam to help fund our trip.

If you go to Liam's home page, you can click on donations at the top right of the page.

For those of you that have already donated, thankyou so much

Saturday, April 19, 2008

WOW!
just read the comments I have been sent
it is so nice to recieve them
Hi ya Kim how are you and kids?
To the others thankyou so much for your words, they mean so much.
I feel like Liam has some kind of magic, he always makes people smile and people love him so